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LR24 D Mia Spins

Autistic art depicting a woman spinning in a dress

Autism is a lifelong developmental disability involving differences in social interaction and communication, as well as restricted and repetitive behavior. Signs show up during the first three years of an autistic person's life. These signs often develop gradually, though some autistic children show typical development followed by regression.

Autism used to be split into subcategories like Asperger syndrome, classic autism, and PDD-NOS. But the differences between groups were fuzzy. They are now grouped together simply as the "autism spectrum."[1]

The number of autism diagnoses has increased in the past decades. Experts have become much better at identifying autism.[2] Whether autism is actually becoming more common is unclear.

Signs of autism[]

Every autistic person gets a unique mix of traits. They may have profound difficulties in some areas while other areas are average or above average. Autism includes strengths as well as challenges.[3][4]

Autistic people tend to experience:[5][6]

  • Difficulty picking up on social cues like facial expressions, body language, subtexts, and hints
  • Trouble making friends
  • Discomfort with eye contact[7]
  • Often being misunderstood by non-autistic people[8]
  • Sincerity
  • Communication difficulties
  • Intense, passionate interests[9][10][11]
  • Repetitive fidgeting (stimming) to self-regulate[12][13][14]
  • Need for routine[15][16]
  • Sensory over- and under-sensitivities[17][18]
  • Integrity[19] and resistance to peer pressure[20]
  • Attention to detail

The "intense world" theory suggests that autistic people experience many things more intensely.[21][22] Autistic brains generate much more information than neurotypical brains while at rest.[23] This could make autistic people more easily overwhelmed, creating a need for calm and quiet environments.

Social obstacles[]

The "double empathy problem" describes how it is harder for non-autistic and autistic people to relate to each other.[24][25][26][27] Non-autistic people tend to judge autistic people more harshly than they judge non-autistic people.[28][29] However, they are less judgmental when they know the person is autistic and when they understand autism better,[30] suggesting that improving understanding of autism could help.

Some autistic people learn to "mask" their differences in an attempt to fit in and avoid mistreatment. However, this has negative mental health effects, sometimes severe ones.[31][32][33] Autistic people are generally happier when they can be accepted for who they are.[34]

Causes[]

Autism is mostly genetic[35] and it begins in the womb. Some prenatal factors (e.g. maternal infections) may increase the odds of autism.[36][37] Experts are still investigating causes. Some proposed causes, such as vaccines, have been clearly disproven.[38][39][40][41][42][43]

Support[]

Autism is lifelong.[44] The right support can make a huge difference in quality of life.

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Therapies for autism include occupational therapy, speech and language therapy, counseling, and support groups. Behavior modification is the most popular therapy, but it is controversial due to ethical issues[45][46] and the risk of inflicting harm.[47][48][49][50]

Some autistic people benefit from prescription medication or over-the-counter medications like melatonin.

While support needs vary, many autistic people cannot live fully independently. Lifelong services can help them manage things like employment, health and safety, and other areas where they might need support.

Autistic people often do better when they are allowed to be themselves. Enjoying their special interests is good for their wellbeing.[51] Behavior like stimming[52][53] and avoiding eye contact[54] can help them stay calm and adapt to situations.

Autism in Society[]

Autistic people have developed their own culture and community.

Autism Rights and Neurodiversity[]

The autism rights movement emerged to increase acceptance of autistic people and to defend against abuse.[55] Through this movement, people hope to cause others to think of autism as a difference instead of a disease. Proponents of this movement wish to seek "acceptance, not cures."[56] Key issues include abuse prevention, self-determination, the right to be themselves instead of being forced to assimilate, and seeing autism as a difference to accommodate instead of a disease to eradicate.[57][58]

Debates Around Autism[]

Debates on autism often split into two groups. The neurodiversity group argues that autism is a difference instead of a disease, and that support for autistic people should honor their individual needs and quirks. The anti-neurodiversity group argues that autism is a disease that should be cured or ameliorated through behavior training to make autistic people fit in.

References[]

  1. What’s the difference between autism and Asperger’s disorder?
  2. The Real Reasons Autism Rates Are Up in the U.S.
  3. Autism Strengths
  4. Strengths of Autism: Why Autistic People Excel at Specific Tasks
  5. About Autism
  6. What is autism?
  7. For Those With Autism, Eye Contact Isn't Just Weird, It's Distressing
  8. Autistic Adults May Be Erroneously Perceived as Deceptive and Lacking Credibility
  9. SPECIAL INTERESTS
  10. Children with Autism and Their Special Interests
  11. The benefits of special interests in autism
  12. Kapp SK, Steward R, Crane L, Elliott D, Elphick C, Pellicano E, Russell G. 'People should be allowed to do what they like': Autistic adults' views and experiences of stimming. Autism. 2019 Oct;23(7):1782-1792. doi: 10.1177/1362361319829628. Epub 2019 Feb 28. PMID: 30818970; PMCID: PMC6728747.
  13. Rethinking repetitive behaviors in autism
  14. Stimming, therapeutic for autistic people, deserves acceptance
  15. What makes autistic people like routine?
  16. Dealing with change - a guide for all audiences
  17. Marco EJ, Hinkley LB, Hill SS, Nagarajan SS. Sensory processing in autism: a review of neurophysiologic findings. Pediatr Res. 2011 May;69(5 Pt 2):48R-54R. doi: 10.1203/PDR.0b013e3182130c54. PMID: 21289533; PMCID: PMC3086654.
  18. Sensory differences - a guide for all audiences
  19. Autistic People Care Too Much, Research Says
  20. Social conformity and autism spectrum disorder : a child-friendly take on a classic study
  21. Markram K, Markram H. The intense world theory - a unifying theory of the neurobiology of autism. Front Hum Neurosci. 2010 Dec 21;4:224. doi: 10.3389/fnhum.2010.00224. PMID: 21191475; PMCID: PMC3010743.
  22. Intense World Theory Of Autism Explained Simply
  23. Intense World Theory Of Autism Explained Simply
  24. Damian E.M. Milton DEM979@bham.ac.uk (2012) On the ontological status of autism: the ‘double empathy problem’, Disability & Society, 27:6, 883-887, DOI: 10.1080/09687599.2012.710008
  25. Outcomes of real-world social interaction for autistic adults paired with autistic compared to typically developing partners
  26. Edey R, Cook J, Brewer R, Johnson MH, Bird G, Press C. Interaction takes two: Typical adults exhibit mind-blindness towards those with autism spectrum disorder. J Abnorm Psychol. 2016 Oct;125(7):879-885. doi: 10.1037/abn0000199. Epub 2016 Sep 1. PMID: 27583766.
  27. Double Empathy: Why Autistic People Are Often Misunderstood
  28. Sasson, N., Faso, D., Nugent, J. et al. Neurotypical Peers are Less Willing to Interact with Those with Autism based on Thin Slice Judgments. Sci Rep 7, 40700 (2017). https://doi.org/10.1038/srep40700
  29. Autistic Adults May Be Erroneously Perceived as Deceptive and Lacking Credibility
  30. Sasson, N. J., & Morrison, K. E. (2019). First impressions of adults with autism improve with diagnostic disclosure and increased autism knowledge of peers. Autism, 23(1), 50-59. https://doi.org/10.1177/1362361317729526
  31. Conceptualising Autistic Masking, Camouflaging, and Neurotypical Privilege: Towards a Minority Group Model of Neurodiversity
  32. Cassidy S, Bradley L, Shaw R, Baron-Cohen S. Risk markers for suicidality in autistic adults. Mol Autism. 2018 Jul 31;9:42. doi: 10.1186/s13229-018-0226-4. PMID: 30083306; PMCID: PMC6069847.
  33. Cassidy, S.A., Gould, K., Townsend, E. et al. Is Camouflaging Autistic Traits Associated with Suicidal Thoughts and Behaviours? Expanding the Interpersonal Psychological Theory of Suicide in an Undergraduate Student Sample. J Autism Dev Disord 50, 3638–3648 (2020). https://doi.org/10.1007/s10803-019-04323-3
  34. Cage E, Di Monaco J, Newell V. Experiences of Autism Acceptance and Mental Health in Autistic Adults. J Autism Dev Disord. 2018 Feb;48(2):473-484. doi: 10.1007/s10803-017-3342-7. PMID: 29071566; PMCID: PMC5807490.
  35. This Is How Much of Autism Is Genetic
  36. Lee BK, Magnusson C, Gardner RM, Blomström Å, Newschaffer CJ, Burstyn I, Karlsson H, Dalman C. Maternal hospitalization with infection during pregnancy and risk of autism spectrum disorders. Brain Behav Immun. 2015 Feb;44:100-5. doi: 10.1016/j.bbi.2014.09.001. Epub 2014 Sep 16. PMID: 25218900; PMCID: PMC4418173.
  37. Atladóttir, H.Ó., Thorsen, P., Østergaard, L. et al. Maternal Infection Requiring Hospitalization During Pregnancy and Autism Spectrum Disorders. J Autism Dev Disord 40, 1423–1430 (2010). https://doi.org/10.1007/s10803-010-1006-y
  38. "Vaccines and autism: a tale of shifting hypotheses". Clin Infect Dis 48 (4): 456–61. 2009. doi:10.1086/596476. PMC 2908388. PMID 19128068. Archived from the original on 31 October 2013. https://web.archive.org/web/20131031043545/http://cid.oxfordjournals.org/content/48/4/456.full.
  39. Do Vaccines Cause Autism?
  40. Autism and Vaccines
  41. Knopf A. Time to remember: Vaccines don't cause autism. The Brown University Child and Adolescent Behavior Letter. 2021 Jul;37(7):9–10. doi: 10.1002/cbl.30559. Epub 2021 Jun 7. PMCID: PMC8207024.
  42. Link between autism and vaccination debunked
  43. Vaccines Don't Cause Autism (and Here's the Proof)
  44. Scott D. Wright , Cheryl A. Wright , Valerie D’Astous & Amy Maida Wadsworth (2019) Autism aging, Gerontology & Geriatrics Education, 40:3, 322-338, DOI: 10.1080/02701960.2016.1247073
  45. Wilkenfeld DA, McCarthy AM. Ethical Concerns with Applied Behavior Analysis for Autism Spectrum "Disorder". Kennedy Inst Ethics J. 2020;30(1):31-69. doi: 10.1353/ken.2020.0000. PMID: 32336692.
  46. Long-term ABA Therapy Is Abusive: A Response to Gorycki, Ruppel, and Zane
  47. “Recalling hidden harms”: autistic experiences of childhood applied behavioural analysis (ABA)
  48. Evidence of increased PTSD symptoms in autistics exposed to applied behavior analysis
  49. Aileen Herlinda Sandoval-Norton, Gary Shkedy & Dalia Shkedy | Jacqueline Ann Rushby (Reviewing editor) (2019) How much compliance is too much compliance: Is long-term ABA therapy abuse?, Cogent Psychology, 6:1, DOI: 10.1080/23311908.2019.1641258
  50. Why caregivers discontinue applied behavior analysis (ABA) and choose communication-based autism interventions
  51. Grove R, Hoekstra RA, Wierda M, Begeer S. Special interests and subjective wellbeing in autistic adults. Autism Res. 2018 May;11(5):766-775. doi: 10.1002/aur.1931. Epub 2018 Feb 10. PMID: 29427546.
  52. Kapp SK, Steward R, Crane L, Elliott D, Elphick C, Pellicano E, Russell G. 'People should be allowed to do what they like': Autistic adults' views and experiences of stimming. Autism. 2019 Oct;23(7):1782-1792. doi: 10.1177/1362361319829628. Epub 2019 Feb 28. PMID: 30818970; PMCID: PMC6728747.
  53. Stimming, therapeutic for autistic people, deserves acceptance
  54. Should We Insist on Eye Contact with People who have Autism Spectrum Disorders
  55. Trivedi, Bijal. Autistic and proud of it. New Scientist. Retrieved on 10 November 2015.
  56. Shapiro, Joseph (26 June 2006). Autism Movement Seeks Acceptance, Not Cures. NPR. Retrieved on 10 November 2015.
  57. A History and Overview of the Autism Acceptance Movement
  58. den Houting, J. (2019). Neurodiversity: An insider’s perspective. Autism, 23(2), 271-273. https://doi.org/10.1177/1362361318820762
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